It’s been seven years since Philomena was diagnosed with ALS, and now, the 25-year-old from Brooklyn is living with a severe form of the disease.
In an interview with The Washington Post, Philomenas sister, Shanna, told the newspaper that her sister has always struggled with anxiety, but the latest diagnosis has taken its toll on her.
“I was thinking, ‘This was going to be the end of me, and it’s not, it’s been going on for seven years and it was going through a lot,'” Shanna said.
“[She said] it’s really hard to get used to it.
She can’t even take the time to breathe and just hold it in.
I was in the middle of a job interview and I got to the front of the line and I was like, ‘I can’t take this any more, I’m done,'” she added.
The family said they’ve been overwhelmed by the outpouring of support from the public, including Philomenacs family.
She’s been diagnosed with amyotrophic lateral sclerosis, or ALS, a form of brain disease that has been linked to traumatic brain injuries.
Amyotrophic lobar degeneration is the most common form of ALS.
According to the ALS Association, nearly 100,000 Americans suffer from ALS and more than 40,000 people are diagnosed each year.
With ALS, the body loses the ability to use muscles and muscles of the brain.
It is believed that the disease leads to progressive loss of motor control and eventually to paralysis.
Shanna, who has cerebral palsy, was diagnosed last November with amyptrophic lateral sclerosing fascitis, or LLSF.
While the cause of ALS is unknown, it has been known for decades that it causes loss of muscle mass.
The disease causes progressive paralysis and can cause severe cognitive impairment.
Despite her struggles, Shannas family said their sister is determined to find a cure.
“I’m not a robot, I love her, she’s the most amazing person, I have to live through her pain every day, every moment,” she said.
“But I’m still here and I’m going to live.”
According the Associated Press, her family said that she had hoped to live for up to 30 years, but that the number of years has been cut down to 10.
They said they plan to donate her hearing aids and other devices to ALS research and education groups, and that they would also be able to provide a monthly allowance of $250 to the family.